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“Not Going Quietly” w/ filmmaker Nicholas Bruckman and panel discussion
November 12, 2021 @ 7:00 pm – 10:00 pm EST
Join us for a virtual film screening of “Not Going Quietly” with filmmaker Nicholas Bruckman, followed by a panel discussion.
The event begins with a quick introduction by filmmaker Nicholas Bruckman, then we will screen Not Going Quietly. Following the film, a personal message by Ady Barkan and brief Q&A with Nicholas will lead into a discussion led by People’s Health Sanctuary moderators Aileen Javier and Corinne Carey with panelists: Tracey Corder, ACRE (Action Center on Race and the Economy); Ursula Rozum, Campaign for NY Health; Julia Solow, Hand in Hand (The Network of Domestic Employers); Scott Desnoyers, health care activist.
A rising star in progressive politics and a new father, 32-year-old Ady Barkan’s life is upended when he is diagnosed with ALS. But after a confrontation with powerful Senator Jeff Flake on an airplane goes viral, catapulting him to national fame, Ady and a motley crew of activists ignite a once-in-a-generation political movement called “Be a Hero.” Together, they barnstorm across the country and empower people to confront their elected officials with emotional, personal stories to demand healthcare justice, and Ady holds groundbreaking interviews with Joe Biden, Kamala Harris, Bernie Sanders, and Elizabeth Warren. Through his journey, Ady discovers that collective action and speaking truth to power offers hope for his family and millions of others.
View Democracy Now! clip of “Not Going Quietly”: Paralyzed with ALS, Ady Barkan Continues Fighting for Medicare for All
This event is a collaboration between the iEAR Presents series with support from RPI’s ARTS department and School of Humanities, Arts and Social Science, and from the New York State Council for the Arts/ NYSCA, with The Sanctuary for Independent Media and People’s Health Sanctuary.
Nicholas Bruckman produced the feature film VALLEY OF SAINTS, which won the Audience Award at the Sundance Film Festival and was nominated for an Independent Spirit award. The film was released on Netflix and was a New York Times Critics Pick.
He previously directed the feature documentary LA AMERICANA, which won the best documentary prize at the NY and LA Latino Film Festivals. The film broadcast worldwide on networks including PBS, National Geographic, and Al Jazeera.
Nicholas Bruckman is the director of NOT GOING QUIETLY, his latest film about 32-year-old Ady Barkan’s life.
Nicholas’ work has received support from foundations including the Fledgling Fund, Cinereach, NYSCA, NYFA, and the Alfred P. Sloan Foundation. He is the founder and CEO of People’s Television, a New York and D.C.-based branded & original content company.
Tracey Corder, Campaign Director – Policing and Incarceration, ACRE (Action Center on Race and the Economy)
Tracey is a Deputy Campaign Director for ACRE ‘s Policing work. She comes to this work after serving as a social worker, electoral campaign organizer and political strategist.
Her most recent position as Director of Federal Action and Racial Justice at Center for Popular Democracy worked to advance direct action as a tactic to advocate for progressive legislation on housing, immigration, voting rights, climate and policing.
Tracey serves on the Advisory Board of Be A Hero, the Steering Committee of Black Womxn For and is a trainer for the Birddog Nation.
Ursula Rozum, Co-Director, Campaign for NY Health
Ursula Rozum, a Syracuse native, is an organizer building people power to win healthcare for all with Campaign for New York Health. In 2012, she was the Green party candidate for Congress. She likes bicycles and growing vegetables.Busy-bee organizer in Syracuse, NY.
The pandemic is exposing the weaknesses of the current healthcare system and why we must create a system that guarantees care for everybody. The New York Health Act (A5248a/S3577a) will provide comprehensive, universal health coverage — including long-term care — for every resident of New York.
Scott Desnoyer, healthcare activist
Scott Desnoyers says his son died because of $20 and Amy Sterling Casil was charged $50,000 after her baby died – they are among many Americans sharing their stories about the health system.
Daniel was 29 when he died. He killed himself after failing to get his medication refilled because he missed a $20 premium he was not aware of.
“I promised his siblings and him at the funeral in front of everyone that I was going to make our lawmakers look me in the eye and see the consequences of their decisions,” shares his father, Scott Desnoyers. a loving father who lost his son and became a Medicare-for-All activist.
Julia Solow, Lead NY Caring Majority Organizer at Hand-in-Hand: The Network of Domestic Employers
Julia’s passion for organizing comes from a long legacy of organizing in her family, personal experiences of struggle and amazing mentors along her journey. She first got involved in movement work when social work professors in college introduced her to immigrant rights leaders fighting for the DREAM Act in 2010. Since then, Julia has been organizing in solidarity with working class people of color-led movements and power organizations on efforts to address gentrification, living wages for farm workers and drivers licenses for undocumented immigrants in New York State, among others. Prior to her work at Hand-In-Hand, she has had the privilege of working at AFL-CIO National Headquarters in DC, Community Voices Heard in New York and as an Americorps VISTA in Cleveland, Ohio. Julia has a Masters in Social Work from CUNY Hunter College. She is bilingual in English and Spanish
Aileen Javier, co-moderator
Aileen Javier is a Community Health Worker/ Outreach Educator/Family Advocate. She is passionate about fomenting community health by supporting and empowering people to successfully navigate the local social and health care system. She worked as a Community Outreach / Family Advocate in Massachusetts. At the Sanctuary Aileen collaborates in the NATURE Lab’s newest initiative: Health Autonomy Clinic and she is working on radio production for WOOC 105.3 FM publishing pieces on local health resources. Aside from the radio production, she helps plan and organize events and distribute flyers, she is ready to help in any way that she can. In the near future she will do community outreach for the HAC.
She enjoys dancing, buying from local businesses and farms, meditation, yoga, hiking and living a healthy lifestyle. She loves talking and meeting new people. She is part of the People Power at the Sanctuary because she believes in the Sanctuary’s Mission “We use art and participatory action to promote social and environmental justice and freedom of creative expression.”
– From Aileen: The Sanctuary For Independent Media is My Tribe and my Second Family. I am honored to be part of such a Great Organization! I Love You Guys! See what Aileen has done with the Sanctuary
Corinne Carey, co-moderator
Corinne Carey is a political & public affairs strategist taking on bold public health initiatives backed by sound evidence & human rights. Carey is the campaign director of Compassion & Choices New York. Compassion & Choices improves care, expands options and empowers everyone to chart their end-of-life journey.
Compassion & Choices’ award-winning video features the groundbreaking filmmaker Hammer urging New York lawmakers to pass the Medical Aid in Dying Act. “My cancer is incurable … I will reach a very debilitated state,” she says in the video, in which she notes that she suffered through more than 100 chemo treatments for ovarian cancer over 12 years before entering hospice in late 2018. “I would so much like to be able to manage my own death by choosing the time and the person I’d like to have with me so that I can die in comfort and with compassion and not in pain and morphine-drugged.” Hammer died on March 16, 2019, at age 79 in her Manhattan home without access to this gently dying option. In February, Oscars in Memoriam honored her for her legacy as an experimental filmmaker. Watch the entire award-winning video of Barbara Hammer urging New York lawmakers to pass the Medical Aid in Dying Act.
Corinne Carey is a radio producer with Hudson Mohawk Magazine on WOOC 105.3 FM.
Be A Hero takes on the impossible fights. Big money. Special interests. Powerful politicians. We’ve taken them all on– and won.
The Be A Hero team is led by Ady and co-Executive Director Jamila Headley. Together with a group of committed organizers, Ady and Jamila are fighting for a more just health care system in the United States.
Four months after the birth of his son Carl, Ady Barkan was diagnosed with ALS. Confronting his own mortality, Ady decided to spend his remaining time fighting to transform America’s health care system so that it guarantees all of us the care and dignity we deserve and lifting up stories of incredible heroism in the face of injustice.
Jamila is an impact-focused leader and an accomplished advocate for healthcare, racial, and disability justice. She thrives at the intersections of strategy and implementation, building organizations and movements at the global and local levels, and caring for the individuals in them.
The COVID-19 pandemic has laid bare the brokenness of our healthcare system, and the time is ripe for transformational change. But in order to win, we must build a powerful movement and we can’t do it without you. Join our fight today!
The New York Health Act [A.6058/S.5474] will provide comprehensive health care for every New Yorker. You and your healthcare provider of choice will work to keep you healthy—New York Health pays the bill. You will never have to fear going without coverage again—especially in the middle of a deadly pandemic.
Over the last year, tens of thousands of New Yorkers died, lost income, fell behind on rent, and struggled to pay medical bills. Meanwhile, private health insurance corporations made record profits. The COVID-19 pandemic puts everyone at risk, but Black, brown, and low-income New Yorkers carry the greatest burden of exposure, with disproportionately more serving as essential workers and disproportionately fewer having access to healthcare.
We need a legislative agenda of compassionate care to heal from this pandemic. That’s why we partnered with allies in the housing justice and decarceration movements to release the Compassionate New York Agenda. This is a road map to saving lives and billions of dollars by providing guaranteed healthcare, stopping unjust evictions, and reducing the number of people behind bars and harmed by the criminal and immigration systems. We reject the austerity agenda, and call for a movement based on compassion and care to drive the legislative agenda in New York.
Join us in building the movement to win universal, guaranteed healthcare — and more. Check out ways to get involved in passing the New York Health Act!
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